This page will help point to web sites,
mailing lists, and any other type of internet source out there that contains information
on dealing with clefts.
And since I just started this page of the "Born to be Cleft" site,
it's still a work in progress! :)
-- This is the biggest cleft
resource on the net. Has a mailing list, picture gallery, kids area, webring, and a
number of other helpful info. Geared more towards parents of cleft children.
-- Another good resource. Although it's not as big as Widesmiles, it contains some
helpful information and a discussion board where people can post on the site.
-- Another great site. Includes a list of support groups from around the country
- Cleft PALS -- This is a support
site from Australia.
- Cleft.net -- Information, research, messageboards and mailings lists
can be found here.
- The Cleft Club -- As I mentioned at this site's main page, this is at
Yahoo's Clubs. Anyone who wants to join to post messages, upload pictures, and check
out the links (you can add some as well). We also have weekly Sunday night chats at
9pm Eastern. Joining the club is free!
For parents of clefts:
- Cleft Talk -- This list is run by Widesmiles. Warning
though, it's VERY busy! At least 100 messages a day. It definitely won't make
you feel lonely! Most of the subscribers are parents of clefts. I'm on this
list on and off because of the heavy traffic. I recommend that if you want to
subscribe, set up a free email address (Hotmail,
Yahoo, etc.) so that the list won't
interfere with your personal mail since there's no way of filtering it.
- Cleft.net's Mailing Lists -- They have
three differnet lists covering different areas. One is general, another for infants
& newborns, and another dealing with breastfeeing & pumping.
- Cleftnotes' mailing list --
Part of the Cleftnotes website, this is another list for parents to share.
- Cleft-Chat and Smile -- Another
list for parents looking for support.
For people who were born cleft:
-- This list is run by Lisa Ann and is just for cleft affected (CA) adults only, 16 years
and up. Since I fit into this catagory, I subscribed to the list and occasionally
get time to post.
- Cleft Teen -- This
list is also run by Lisa Ann and is for teens and young adults (13-23) who were born
cleft. Since I'm no longer in this age bracket, I'm not on the list, but I'm sure
all cleft teens are encouraged to join in!
For both parents and clefts:
- Stitches -- This list is not only for people affected by clefts but
anyone with a facial condition.
Cleft Club -- Soon this will become a mailing list (I will also have a
messagebaord as well) but for now it's inbetween of a messageboard and mailiing list.
You'll know what I mean when you join.
Disorders - From Suite101.com (similar
to About.com), this site deals with speech and language disorders. Contains
articles, links, discussions, & more. And the guide rated my site 5 stars :)
If the below image says I'm online, you can chat with me
live! If not, you can just me a message.
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The last time I got around to updating this page was Monday, April 02, 2001